Saturday, November 24, 2012

67th Annual BVA Convention--Galveston Island

BVA Convention Top Ten:

1.  Gulf of Mexico
2.  Poolside Bar
3.  The Strand
4.  The Elissa
5.  The Pleasure Pier
6.  The Lone Star Flight Museum
7.  NASA
8.  The Space Shuttle Training Simulator
9.  The Awards Banquet--I was elected as the first BVA Auxiliary Board 
     Member (Secretary) from the OIF/OEF generation. 
10.  Reconnecting with OPS friends!

The Gulf of Mexico
Oceanside
Lou and Melissa at The Elissa
Warm summer night by the ocean at Galveston Pleasure Pier
Billy Baxter showing off at the Lone Star Flight Museum
Mission Control, Johnson Space Center
Old Mission Control Room, Johnson Space Center
NASA
Robonauts
Operation Peer Support Group at NASA
Sean with astronaut Mike Fossum
The family ready for the banquet
Cate and Melissa at the banquet
Melissa, Christina, and Lou
Birthday girl Cate and husband Tim
Lou and Ben

Horses for Heroes

July took us back to Colorado for the Challenge Aspen Horses for Heroes program in conjunction with Sopris Therapy Services.  We had an AMAZING trip with friends, old and new.  I spent the week with my horse, Jilly, and Sean spent his week getting to know Navajo.  The program incorporated music and art therapy into the daily sessions with singer/songwriter Mack Bailey and artist Sheri Gaynor.  There was an afternoon of fishing and swapping TBI stories up on the mountain.  Our week concluded with a cookout at the Carbondale Rodeo.  

Sean and I also attended the Vince Gill and Amy Grant Golf Classic, an annual fundraiser for Challenge Aspen.  We had the opportunity to visit the horses at Sopris before the evening's charity dinner and concert. The music was beautiful and we were able to speak with Vince and Amy after the show. We are forever grateful for the opportunities provided to us by Challenge Aspen.



Helen Deutsch Writer's Workshop--New York City

In June of 2012 I was invited on a Caregiver's Writing Retreat sponsored by Wounded Warrior Project.  Forty caregivers of veterans from across the nation were flown into New York City for a weekend of lights, sounds, laughter, and writing.  

We spent two full days working in our writing groups with professional mentors (you can read about my amazing mentors here: http://gothamist.com/2005/04/11/jessica_blank_and_erik_jensen_playwrights_the_exonerated_authors_living_justice.php) and honing our writing skills.  In the evenings we attended a play and had time to explore Times Square.  Several of us had the opportunity to visit Ground Zero and see the beautiful memorial fountains.

We returned in September for part two at the Writer's Guild.  Working once again with our mentors, we had the chance to delve deeper into our writing and into ourselves to really find our "voice" and practice our craft.  The highlight of the trip was an evening bus tour around NYC and the surrounding boroughs which was wrapped up at an authentic NY pizza joint.  
My group has formed an online writing group to encourage one another to keep plugging away at our writing and discover where it takes us!



Thursday, July 5, 2012

Opening the Box

Off topic from what I usually write here, but before I can sleep I need to clear this from my head.

From the time our kids were little, our 4th of July tradition had been to spend the day at my dad's farm.  We would spend a week planning out the meal from burgers and brats to my step mother's AMAZING potato salad to the red, white, and blue jello she made for the kids every year.  By noon we would be at the house setting up and preparing for the day's festivities.  

The kids would help their dad unload the trunk full of fireworks with wide-eyed anticipation. 
"How long til it's dark?"  
"Can we just do one now?"  
"Pleeeeease?"  

Before long they would be popping Snaps on the sidewalk and squealing with delight.  My brother and sister would come out with a box of matches and help the little kids light the black tabs that would grow into "snakes" and set off colored smoke bombs in the driveway.  




By the time dinner was ready, Sean and the other "big boys" would have the daytime attractions ready to fire:  bottle rockets and parachutes.  Kids would scramble as the paper parachutes drifted through the sky.  


Despite the heat, my dad would start a campfire and set up a semi circle of chairs facing the large gravel driveway.  He was always mindful of wind direction and to make sure no one got too close to the livestock or the hay barn.  We would fill our plates with food just before dusk and settle in around the campfire.  Before supper was over, the kids would be begging for marshmallows to roast.  

As the sun set in the west, the boys would start their fireworks display. Aerial repeaters, roman candles, helicopters, ground spinners, strobes, and fountain tubes filled the air with gorgeous colors of flashing light and the smell of sulphur. When the show had finished, the kids would get their turn with multicolored sparklers to see if they could write their names in the air before it burned out.

After our supplies were spent, we would pull our chairs into the driveway for a perfect view of the city fireworks display. Dad always joked that we had to move further out into the driveway each year for a good view because, "It seems like those trees get taller every year."


When the last sparkle left the sky, it was time to gather around the bon fire and roast marshmallows.  If you were roasting for Grandma, you would stick it deep into the flames until it caught fire.  For the little kids, just a little brown around the edges.  Add graham crackers and Hershey bar for the most finger-licking melty treat you can imagine!  



The logs would slowly begin to burn out and turn to ash.  Any free lap was prime real estate for a sleepy child. A few stray fireworks would pop in the distance from time to time. 

I have missed these times greatly in the past few years.  The farm no longer stands and my dad is gone.  My husband can't enjoy the fireworks the way he once did and the children are grown with plans of their own.  Today was HARD.  

A wise and wonderful friend told me tonight that the reason today was so painful for me was because these memories are like opening up a box of my father's belongings--things I'm not necessarily ready to deal with that have raw pain attached to them.  I opened a box and looked inside.  It's all there, inside me.  So until next year, I'm going to replace the lid and store that box away, knowing there is a piece of me stored inside as well. It's not gone. . . but will be there when I'm ready to peek in again.  


Monday, June 25, 2012

Western Blind Rehabilitation Center


Sean was accepted into the Comprehensive Neurological Vision Rehabilitation (CNVR) program at the Western Blind RehabCenter (WBRC) in Menlo Park, CA.  On February 21st we flew to California to get him admitted into the program.  Through the VA’s Caregiver Program, I was able to spend the first week and a half at the blind center with Sean to help him adjust and to observe the program. 

The staff and program at WBRC were impressive! We both felt at ease and Sean settled into his routine.  His day included:  Manual Skills where he learned woodworking, ceramics, leatherwork, and gardening; Orientation and Mobility which offered a refresher on his mobility and cane skills along with training on the TrekkerBreeze; Living Skills focused on cooking, cleaning, and using devices such as the Milestone to better organize his day; Visual Skills emphasized using the Victor Reader Stream for his audio books as well as using proper lighting and scanning techniques; CNVR training instructed him in use of the iPad and his computer, and introduced him to Interactive Metronome (IM).  IM uses rhythm to help reset the brain’s timing and to improve a variety of functions including memory, concentration, and focus.  Sean will be continuing IM therapy at home.

Before I returned home we took the Caltrain into San Francisco for the day.  We went to Pier 39 and took a boat tour of the bay around Alcatraz and under the Golden Gate Bridge.

I returned for the family training portion of the program on May 9th.  We met with the neurologist and with Dr. Cockerham and discussed the results of the MRI.  The high-resolution MRI did detect areas of brain damage on the right side in the frontal lobe, temporal lobe, and deep white matter.  While there is not visible damage in the occipital lobe (visual center of the brain) vision travels throughout the brain and all parts of the brain play a role in what the brain sees.  Sean’s damage is on the right side, and his weak eye is his left since vision crosses the brain while it travels to the back of the brain.  Testing indicates that Sean receives very little visual information through his left eye.  When presented with a light bar approximately four feet long with flashing lights, Sean’s eyes responded automatically to lights on the right side, but did not respond or “jump” to any stimuli from the center of his body to the left.  While there is no clear “x marks the spot” answer, I respect that there are things medical science cannot explain and that the doctors were up front and honest.  The instructors who worked with Sean every day did not find any indication of conversion disorder.  At this time continued vision rehab, such as the CNVR program, is recommended for possible improvement over time.  Sean will likely return to the WBRC in 8-12 months.

Overall, we were thrilled with the program and found the staff, training, and accommodations to be top notch!  HUGE thanks to John and Dan of the CNVR program, as well as to Nikki, Anita, Paula, Matt, Tony, Nicole, and all the nursing staff (and anyone I forgot)!



Western Blind Rehab Center, Menlo Park, CA
Playing Black Jack
Pier 39
Sea Lions at Pier 39
Golden Gate Bridge
Sean made dinner in Living Skills
Watering his garden
Working in the shop with Tony
Graduation with Program Manager John Kingston
Technology Class with Dan

Wednesday, June 20, 2012

CDMRP

March took us to D.C. to participate on a panel as part of the Congressionally Directed Medical Research Programs.  Basically, we reviewed grant proposals and then worked with a panel comprised of veterans, doctors, and scientists to determine the merit of each proposal as it applied to science and to the impact for patients.  To say this was a learning experience would be an enormous understatement!

The highlight for me was meeting fellow FOV staff Brannan Vines, and Amanda & Tony Patchell!  So exciting to meet my friends in person and be able to hug each one of them.  The trip was a huge success and a great time was had all around.

Melissa with Brannan Vines,
President and Founder of Family Of a Vet
Melissa and Amanda
Tony and Sean

Challenge Aspen C.A.M.O.

In February Sean and I had the amazing opportunity to participate in the Visually Impaired Ski & Snowboard festival through Challenge Aspen C.A.M.O. We traveled to gorgeous Snowmass, Colorado for a week-long adventure filled with skiing, friends, and relaxation.  

Sean easily picked up with skiing as if he'd never stopped.  The sport is excellent for his balance as well as for physical fitness.  We spent time with fantastic friends and made new ones as well.  The girls took a day off and rode the gondola up Mount Aspen and had lunch at an incredible hidden gem called Krabloonik where we were able to watch the sled dogs get hitched and ready to run.  



Steven Schulz and Sean at Spider Sabich

Sean with instructors Kathy and Jim
Torrey Shannon and Melissa riding the gondola
to the top of Mt. Aspen

Girls' Day at Mt. Aspen
Dog sleds at Krabloonik
Melissa and Debbie Schulz 
Sean, Karen, Eddie, Steven, Sergio, Corey, and Dorian

We enjoyed our experience so thoroughly that we will be heading back to Snowmass in July for Horses for Heroes, part of Challenge Aspen's C.A.M.O. program.  Can't wait!